Under the Big Top

Logan and I just had an amazing time at the circus.  If you follow me on Facebook, you can see some photos that I shared from last weekend.  We received a free kids ticket to go and everyone else in our household had something else to do.  So, Logan and I woke up, got dressed...
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Leukodystrophy Conference Impressions

A letter from Paul Erena on his attendance at the international Leukodystrophy conference: On June 16th I attended the conference Leukodystrophy: Current, Novel, and Future Therapies, hosted by McGill University Children’s Hospital and Dr. Geneviève Bernard in Montréal, Quebec. It was a busy day, with updates and information about a number of leukodystrophies, including PMD....
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Volunteers Needed!

The PMD Foundation is looking for volunteers to assist with grant research. No experience necessary! Grants are a great way to connect the exciting work of the foundation with additional resources to do even more for families affected by PMD. We need help searching for appropriate grants and saving them into an organized spreadsheet with...
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2nd Annual Harter Cup

Doug began attending the PMD NJ golf outing over 10 years ago and became hooked on the event given the ability to spend the day with others in the PMD community and share this experience with friends and family. The event became an annual tradition for the Harters and one of their favorite days of...
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Meet Your PMD Warrior

If we were asked to describe an affected PMD boy or girl, what word comes to mind?  There are actually too many, right?  I do think “warrior” fits pretty well.  If you do a google search, here is the definition it shares: war·ri·or (noun) ˈwôrēər/ 1. (especially in former times) a brave or experienced soldier...
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