Meet Your PMD Warrior

If we were asked to describe an affected PMD boy or girl, what word comes to mind?  There are actually too many, right?  I do think “warrior” fits pretty well.  If you do a google search, here is the definition it shares: war·ri·or (noun) ˈwôrēər/ 1. (especially in former times) a brave or experienced soldier...
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Welcome to Holland

Like most of you, PMD was something that just showed up in our family, out of nowhere.  It’s very similar to the poem, “Welcome to Holland.”  http://www.our-kids.org/Archives/Holland.html   When first diagnosed, we were told that Logan wouldn’t live past his 10th birthday.  He was two at the time and I honestly wasn’t sure how to fill a...
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Rolling Through Life

An inspirational speech by a young man, Cisco Oller, who battles Pelizaeus-Merzbacher Disease and is bringing down barriers with love, perseverance, and faith. His PMD is less severe than most and this allows him to articulate clearly what many boys trapped in their bodies cannot. Cisco reminds us to be thankful for all that we...
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