Leukodystrophy Conference Impressions
A letter from Paul Erena on his attendance at the international Leukodystrophy conference: On June 16th I attended the conference Leukodystrophy: Current,... Read More
Don’t take your Lamborghini to just anyone!
2018 has been a very busy year for The PMD Foundation. It has also been a very busy year for The Manley... Read More
Volunteers Needed!
The PMD Foundation is looking for volunteers to assist with grant research. No experience necessary! Grants are a great way to connect... Read More
2nd Annual Harter Cup
Doug began attending the PMD NJ golf outing over 10 years ago and became hooked on the event given the ability to... Read More
Executive Director Letter April 2018
I’m nearing my first anniversary as being the PMD Foundation’s Executive Director and I can tell you I love my job, it... Read More
Board Chair Letter April 2018 – Doctor Fatigue
One thing that I think people don’t understand about the parents of PMD Children and all special needs children for that matter,... Read More
Meet Your PMD Warrior
If we were asked to describe an affected PMD boy or girl, what word comes to mind? There are actually too many,... Read More
Welcome to Holland
Like most of you, PMD was something that just showed up in our family, out of nowhere. It’s very similar to the... Read More