One of the functions of the PMD Foundation website is to bring everyone together as a community. It is our intention that families with PMD-affected children should get to know one another. Knowledge is more easily shared and questions are more easily asked when you know the other people with whom you are communicating. This is particularly helpful to families with new PMD diagnoses who are looking for camaraderie and other families they can relate to by reading your stories.
Unfortunately, as we say, PMD is “rare, but everywhere.” Families often feel like they’re alone with this problem. You can’t go next door and ask about it because your neighbors don’t fully understand what it’s like to have a child with PMD. So this will be our way of making you all “online neighbors.” You will get a glimpse into the lives of others who share the same difficulties and experience the same small joys. We hope to make it easier for individuals to communicate with each other. It’s great to discuss things on a blog/website, but sometimes there are more private questions that you’d like to speak about one-on-one. When given permission, we have included email addresses and/or phone numbers if others would like to reach out to the story author.
Please send your information to firstname.lastname@example.org. We will add family stories as we receive them. When submitting your information and story, please make sure you include the following:
We are looking into preschool for Carson. He is really intelligent and understands everything and he just loves other children so we think this would be a great opportunity for him.
We are from north Louisiana, but live right now in Hattiesburg Mississippi where David is pursuing a second career in medicine. He will graduate from the William Carey College of Osteopathic Medicine next May.
Kenny is the happiest child we know, he is always upbeat and ready to meet a new friend. He has been in school since age 4. He loves Scooby Doo and Walmart.. but most of all he likes to listen