Government Articles

For information on the government’s response to rare diseases and other medical issues, click on the links to the articles listed below:

Social Security Announces New Conditions for Compassionate Allowances Program

NORD Applauds Congress for Bipartisan Action

Require free access over the Internet to scientific journal articles arising from taxpayer-funded research

Creating Hope for Children with Rare Diseases

Senate Vote Shows Rewards of Building Strong Advocacy Foundation

McCaul-Sponsored ‘Creating Hope Act’ to Develop Treatments for Rare Pediatric Diseases


NORD Supports TREAT Act Introduced by Senator Hagan

Harper Government supports research on rare diseases

Lifetime and Annual Caps Issue Not Yet Resolved

Treating Rare and Neglected Pediatric Diseases: Promoting the Development of New Treatments and Cures

Genetic Information Nondiscrimination Act (GINA) of 2008

Bush Signs Rare Diseases Legislation: New Laws Address Unmet Needs of 25 Million Americans