Newsletter

Holiday 2016

In this issue: Benjamin Duddles, Letter from the Chair, Dr. Grace Research, Fundraising, MRI Diagnostics, SAC Members, DIY Assistive Device, Holiday Fun, Holiday Yummies, Contact Information

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Holiday 2016

Fall 2016

In this issue: Valentin Bal, Voice of a PMD Dad, Letter From the Chair, News, Fundraising, Yummy Fall Treats, Fun Fall Projects, Contact Information

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Fall 2016

Summer 2016

In this issue: Francisco Oller, Research Update, Letter From the Chair, Fundraising, Golf Outings, Indy Conference, Voice of a PMD Mom, Summer Crafts

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Summer 2016

Spring 2016

In this issue: Nathan Dukes, Upcoming Events, PMD Foundation News, Research Update, Spring/Summer Crafts, Fundraising, Contact Information

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Spring 2016

Holiday 2015

In this issue: Archer Hammon, Chairman’s Letter, Volunteers, Garbern Family Update, Eazy Hold Grippers, Fundraising Postcard & Winter Crafts, Holiday Giving , Contact Information

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Holiday 2015

Fall 2015

In this issue: Kai Bishop , Foundation Revisions , We are Family Pediatric Palliative Care, Hatchback Shoes , Summer Events Playgrounds for Everyone, Fall Recipes , Trick or Treat for PMD Fundraising,

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Fall 2015

Summer 2015

In this issue: Camden Holmes, Summer Events, Service Dogs, Leukodystrophy Centers, Summer Projects, Fundraising & Contributions, Donating & Contact Information.

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Summer 2015

Spring 2015

In this issue: William Mains, Editor’s Message, Patient Registry, New Executive Board, Service Dogs, Summer Events, Fundraising, Fun Project to Share

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Spring 2015

Holiday 2014

In this issue: Gabriel VandenBerg , Chairman’s Message, Research Updates , Foundation $$$$ Volunteers Needed, Fall Events Service/Therapy Dogs, Fundraising

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Holiday 2014

Fall 2014

In this issue: Leonardo Labrada , Editor’s Message, Upcoming Events , Research , PMD Registry & Just for Fun, Recent Events, Fundraising and Where money goes

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Fall 2014

Spring 2014

In this issue: Chad Chlebowski , Editor’s Message , Research Updates , Just for Fun , NEDS & More Editor, Upcoming Events , Fundraising , Donating & Contact Information

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Spring 2014

Holiday 2013

In this issue: Jones Brothers, Editor’s Message, Research Updates , Hops-A-Palooza & Jones Walk, Fundraising, Just for Fun , Financials, Donating & Contact Information

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Holiday 2013

Fall 2013

In this issue: Ana Robinson , Editor’s Message , Research Updates , Golf Outing & Symposium, Save the Date, Fundraising , Just for Fun , Donating & Contact Information

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Fall 2013

Spring/Summer 2013

In this issue: Cooper Oakes , Editor’s Message, Research Updates, Registry, Save the Date , Raising Funds, Just for Fun , Donating & Contact Information

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Spring/Summer 2013

Holiday 2012

In this issue: Jackson Becher, Editor’s Message, Save the Date, Research Updates, People in Action, Raising Funds , United Way Contributions, Auditor’s Letter

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Holiday 2012

June 2012

In this issue: Alejandro Garcia, Editor’s Message, Research Updates Note from the Garbern Family, Golf Outing Family Conference Walk ‘n Roll, New Website, People in Action, Raising Funds

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June 2012

Holiday 2011

In this issue: Logan Parker, Editor’s Message, Honoring Jim Garbern, Research Updates Leukodystrophy Alliance, People in Action, Raising Funds, Rare Disease Day 2012 Min Xiang, Holiday Thoughts, Financials

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Holiday 2011

Fall 2011

In this issue: Eli Meade, Editor’s Message, Save the Date—Golf & Other fundraisers, Li Yong Meade Update, Dr. Garbern—Pancreatic Cancer Diagnosis, Research Updates & Fundraising

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Fall 2011

December 2010

In this issue: Jaden Manley, Chairman’s Message, Research Updates, People in Action, Fundraising Ideas, A Gift of Real Value, Save the Date Polar Bear Plunge Rare Disease Day 2010, Holiday Thoughts, Financials

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December 2010

September 2010

In this issue: Rafael Stutterd PMD in Australia, Chairman’s Message, Save the Date Golf & Walk ‘N Roll, Research Updates Dr. Garbern, People in Action Kristen, Natalie & Marsha, Fundraising Ideas

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September 2010

May 2010

In this issue: Remembering Alex, Chairman’s Message, Clinical Update New Logo, Parker Fund Barbecue Rob’s Polar Plunge Tara’s Gift Wrapping, Sharing our gifts, Save the Dates, Save the Dates (Cont’d) Supporting the Foundation, Supporting the Foundation, Collage Update, Vision & Mission NING Social Network Donating

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May 2010

December 2009

In this issue: Chairman’s Message, Honoring Patti Daviau, Research Update Logo Contest Help Without Trying, September Fund Raisers Save the Date, Ventura Family Remembers Daniel, 2008 Financial Reports, Supporting the Foundation, Collage Update, Contact Information Vision & Mission Donation

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December 2009