PMD Foundation Member
Patti, otherwise known as “Mama Bear” to her extended PMD family, lives in Indianapolis with her husband George where she is a registration specialist at IU Hospital. PMD has affected Patti’s extended family dating back at least 100 years and claimed the lives of Patti’s own three sons, George, Brantley and Adam. In 1989, Patti started a PMD newsletter and then in 1990, hosted the first annual PMD Family Get-Together at Riley Hospital for Children in Indianapolis. This event has become an annual tradition, providing support to many PMD patients/families. Patti is also one of the first lines of contact for families with recent PMD diagnoses. She spends many hours on the phone sharing her knowledge of the disease with those who want/need to know more. Patti hosts a group on Facebook that provides PMD families around the world with a venue to share experiences and ask questions of their peers. Patti was a 2010 recipient of a nationally recognized “Jefferson Awards for Public Service” and a “2009 Community Service Award” in Indianapolis.