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Story About Us

PMD Foundation

We serve those affected by PMD through education, research, service and advocacy.  PMD can be treated in the near future with new advances in gene sequencing and cell therapies.  Time is of the essence to save a PMD child from this disease.  We cannot do it alone and are in need of your support.

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Urgent Cause

What is Pelizaeus-Merzbacher Disease?

PMD is part of a group of disorders known as Leukodystrophies.  PMD children are born with little myelin.  Coordination, motor abilities, and intellectual function are delayed to variable extents.  None of this stops PMD children from smiling, and our families and communities from loving them.  Please extend their time here on Earth and make their lives about living and not surviving.  With your help we can beat this disease…


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The PMD Foundation supports a variety of events that provide fundraising, public awareness and family support opportunities.  Check back regularly to make sure you don’t miss anything!  Keep an eye out for things happening in your area, join in the fun!
If you have suggestions for event listings that should be included, please let us know. Contact us at
To find out about upcoming events, please hover over the Events tab.

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Words From Our Families