We serve those affected by PMD through education, research, service and advocacy. PMD can be treated in the near future with new advances in gene sequencing and cell therapies. Time is of the essence to save a PMD child from this disease. We cannot do it alone and are in need of your support.
The PMD Foundation supports a variety of events that provide fundraising, public awareness and family support opportunities. Check back regularly to make sure you don’t miss anything! Keep an eye out for things happening in your area, join in the fun!
If you have suggestions for event listings that should be included, please let us know. Contact us at PMDAwareness@pmdfoundation.org.
To find out about upcoming events, please hover over the Events tab.
“I reached out to our local PMD community to get in touch with others who had walked the path we were beginning. Several parents shared with me their experiences, gave me strength, and helped me to hope again for Liam.”
“Garrett and Gavin are never afraid to seek out new things and meet new people. Though by some accounts their future is not bright, Garrett and Gavin live a life filled with love, compassion, fun and adventure. My husband and I enjoy them every day. Our sons are the light of our lives.”
“We feel fortunate to have received the diagnosis so soon. We soon found our way to The PMD Foundation website and were able to find many answers to our questions. And most importantly we learned that while PMD is extremely rare we were not alone.”