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We hope you will find this website helpful, interesting and informative. We appreciate all constructive suggestions and will continue to make improvements to serve you better.

The PMD Foundation has embarked on a quest that depends on the participation of our PMD families. To compete with other rare diseases for research funds and scientific investigator participation it is imperative that compiled patient data become available. It is our hope that the PMD patient population will contribute to the launch of the PMD Patient Registry. In collaboration with The Children’s National Medical Center in Washington, D.C. our dream can become a reality. For more information, click here

Keep an eye out for new articles under the research tab. Past Newsletters you may have missed are available under the News tab

If you are interested in helping us spread the word about PMD, go to our Support page and download copies of our brochures.

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