Here are links to some of the best Support sites on the web:
Children’s r.a.r.e. Disease Network
The Morgan Project
Pelizaeus Merzbacher Disease Support Group (U.K.)
Here are links to some of the best sites on the web with information about PMD :
Wayne State
European Leukodystrophy Association
Australian Leukodystrophy Support Group
Baylor Medical Center (Genetic Testing)
NINDS (National Institute of Neurological Disorders and Stroke)
Emedicine
Jacob’s Ladder
Gene Reviews
UCSF Division of Neonatology
Here are links to some of the best sites on the web with information about Leukodystrophies :
Hunters Hope
Canavan Research Foundation
The Myelin Project
NORD (National Organization for Rare Disorders)
Leukodystrophy Alliance