Help Shape PMD Educational Materials for Future Nurses

We are working together with PMD Foundation Board Member Angela Chlebowski to help her reach the families she needs to conduct a short informational survey. This survey will take under 15 minutes to complete. 

The information from this survey will be used to help shape instructional materials that will be used to educate future nurses and also to assist newly diagnosed PMD families in the future. Your survey responses will provide helpful information to provide the best care for all PMD children around the world.

To be clear this survey is different and separate from the Ionis Pharmaceuticals “Living with PMD” survey you have seen us promoting in recent days. Angela’s survey serves a different purpose and is targeting specific PMD families that have experience with in-home nursing care for their children. We need your help in completing both surveys. 

Please take a moment to watch the following video from Angela Chlebowski that explains the reason and goals for this survey. We hope that you can spare just a few minutes to help Angela with this project. Your time will help to improve care for future PMD families. 

Thank you!

Sincerely, 

Dave Manley

Board Chair