January 2024 – The Board of Directors of the PMD Foundation is pleased to announce the transition for the role of Board Chair. Storm Greenway is stepping into the role, following in the footsteps of Dave Manley, who served on the PMD Foundation Board for 20 years.
Read MoreNEW JERSEY - With compelling competition for its research grant, the PMD Foundation is pleased to announce the unprecedented funding of two research projects totaling $200,000. Instead of the originally proposed $100,000 grant award, the PMD Foundation has doubled the grant and chosen both Dr. Larry S. Sherman, PhD and a collaborative team led by Dr. Enrico Silvio Bertini, MD, and Dr. Davide Tonduti, MD, to receive a PMD Foundation Research Grant.
Read MoreIn breaking news regarding the treatment of Pelizaeus-Merzbacher disease (PMD), Case Western Reserve University and Ionis Pharmaceuticals, Inc. have signed an exclusive license agreement to advance and commercialize a therapeutic approach discovered by university medical researchers…
Read MoreSALADO, TX | August 21, 2019 -- The PMD Foundation, in partnership with Children’s Hospital of Philadelphia (CHOP) and an international consortium of leukodystrophy clinicians and researchers, announced today that they have launched an initiative to collect robust natural history data on individuals with Pelizaeus-Merzbacher Disease (PMD) using a CHOP-based patient registry as a platform.
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