Judy lives in Gettysburg, Pennsylvania with her husband, Rick, and grandson, Brayden. Brayden turned 8 years old in July 2022 and was diagnosed with PMD when he was one year old. He is the first generation to be diagnosed in their family.
Read More
Patricia is a fellow PMD mother and is located in Germany. Patricia is very engaged and ambitious and similar to me, eager to create more awareness for rare diseases and help other families with PMD.
Read More
Brittney lives in Lafitte, Louisiana, with her husband Jonathan, and two boys Zedin (6) and Zayce (2). Zayce was diagnosed with PMD on September 29th, 2021.
Read More
Kathy and her husband Jim live in Skaneateles Falls, NY on their family farm, raising beef cattle, pigs and chickens. They are proud parents of 4 children and 7 grandchildren. Kathy is also the Aunt of Jaden Manley who was diagnosed with PMD in 2001.
Read More
Angi lives in Denham Springs, LA and is married to Brandon. Angi and Brandon have four children: Kailey, Kendall, Kathlyn and Brant. Brant was born August 22, 2019 and diagnosed with PMD on September 28, 2020.
Read More
Jeff is the past Board Secretary and past Foundation Chair . Jeff has been on the board and an Executive Committee member since 2001.
Read More
She is married to Sander and they have two children: Selina and Valentin. Valentin was born in June 2013 and diagnosed in December 2015 with PMD. Ever since Marianne is constantly in touch with colleagues from various departments and researchers around the world to find a cure or a treatment and build a strong case to be heard at bio-pharmaceutical companies. Furthermore, she wants to ensure that Europe (ELA – European Leukodystrophies Association) and USA (PMD Foundation) work closely together to achieve our common global goal to cure PMD.
Read More
Angela Chlebowski lives in Fairfield, CT with her husband Jonny and their three children: Jillian, Ian, and Chad. Chad was born on August 1, 2008, and was diagnosed with PMD in July 2013. He is the first person to be affected by PMD in their family.
Read More
Lee lives in Houston, TX, with his wife Maite and his daughters Sara and Ana (diagnosed with PMLD at 18months).
Read More
Maite was born in Santiago, Chile, and came to live in Houston, TX, in 2000, where she met her husband, Lee. Maite’s career at IBM, Compaq, and HP spanned 15 years in Human Resources and Management Development.
Read More