The Herndon Family Story

Kenny Jude - Born 2008

Kenny Jude Herndon was born August 4th 2008 with classic PMD (duplication in plp1.) He lives in Broken Arrow Oklahoma with parents Jennifer and James Herndon and siblings William, Jamie and Jocelyn. When Kenny was 6 months old, they noticed he wasn’t reaching milestones he should at his age, and his eyes would move from side to side (nystagnus).

An MRI was scheduled. While at the appointment, Kenny’s dad (James) contacted Dr. Micheal Kayser at St. Francis in Tulsa Oklahoma. James had attended high school with him. Dr. Kayser turned out to be head of genetics at St. Francis and set up a lot of tests to help diagnose Kenny. Within two weeks they had the results, and sat with Dr. Kayser as he explained everything about plp1 and Classic PMD. It seemed like horrible news but at the same time they were relieved to know and have someone they knew in their corner.

Kenny is the happiest child we know, he is always upbeat and ready to meet a new friend. He has been in school since age 4. He loves Scooby Doo and Walmart.. but most of all he likes to listen to his favorite band, Godsmack. He speaks very well and gets around marvelously in his wheel chair.

Kenny has been a blessing in their life. Anyone who meets him falls in love instantly.

If you’d like to reach out to another PMD family with questions or if you just need someone to talk with, please reach out to us. We can help you get in contact with a PMD family.