PMD Foundation Remains on Solid Ground through 2024

Every September we celebrate Leukodystrophy month with our Run, Walk, or Roll event. Our Warrior Teams raise funds for research and awareness for all of our PMD families. Every mile is in honor of someone who has been affected by PMD or PMLD. 

We had a terrific turnout for our 2024 event. Warriors and families all over the world participated, coming together to support and celebrate each other. 

A big thank you to the PMD community as we are having another strong year from a fundraising perspective! We raised almost $63,000 through the end of October putting us in a strong position compared to the $75,000 we raised last year. The Run, Walk, or Roll was smaller this year, but we still raised about $17,500. 

In September we received a $20,000 donation from Ionis Pharmaceuticals, which is intended to help further the education of the broader community on PMD. We look forward to providing updates as the Board determines the best use for these funds. 

We recently funded our final $50,000 from our previously committed $200,000 in research grants. 

We remain in strong financial health with over $160,000 in additional unrestricted funds. The Board remains committed to finding the best use for these funds to further the mission of the PMD Foundation.