The Merriweather Family Story

Mason, born 2017

Sara Stuckey shares the story of her son, Mason:

Mason began displaying symptoms around 4 - 5 months old. He was initially diagnosed with cerebral palsy just before his second birthday. However, two months ago, we received the diagnosis of SPG2 from the neurologist although the genetic counselor believes it is PMD Null. Mason will be 4 years old in November.

It’s just a waiting game to find out the exact type. He is the first in the family to have this genetic mutation. As his mother, I’m still processing my feelings about the diagnosis! So many emotions that only other parents and caregivers of our boys could understand.

One day at a time is my motto! 

Mason is very much in toddlerhood right now. He’s mischievous, curious, and has a passion for sharks only matched by marine biologists! 

We are in the process of starting an early education program at school soon as well as looking into whatever other supports are out there. We are trying to get a wheelchair as well as a gait trainer. We are also trying to find what can help with the spasticity - right now I am only using CBD. It’s definitely a journey.