Kenny Jude Herndon was born August 4th 2008 with classic PMD (duplication in plp1.) He lives in Broken Arrow Oklahoma with parents Jennifer and James Herndon and siblings William, Jamie and Jocelyn. When Kenny was 6 months old, they noticed he wasn’t reaching milestones he should at his age, and his eyes would move from side to side (nystagnus).
Read MoreMy name is Francisco Oller, and I was born in San Juan, Puerto Rico. Although I came into this world without any complications, I developed nystagmus within two weeks. After a CT scan and MRI, I was immediately referred by my father’s uncle, Dr. Jose Luis Garcia Oller, to Dr. Neil Miller, a neurophtalmologist at Wilmer Eye Institute at The Johns Hopkins Hospital. At three months, my diagnosis was thought to be either congenital motor nystagmus or spasmus nutans. Later on, I developed head nodding, which did not cease until I was nine months old.
Read MoreCarson was diagnosed with PMD at 9 months of age after extensive testing. A failed hearing test at birth got the ball rolling and from there the first symptom to appear was nystagmus at around 4 months.
Read MoreThe Jones boys, Garrett, 16 and Gavin, 12, were diagnosed with Classic duplication PMD in 2001. Garrett was 3 and Gavin was not yet born. We (their parents, Gina and Gordon) made the decision to have Gavin partly because of the rarity of PMD. We felt that they would at least have each other as brothers and partners.
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