Jeff is the past Board Secretary and past Foundation Chair . Jeff has been on the board and an Executive Committee member since 2001.
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Jeremy has a passion for volunteering his time with various organizations including the United Way, Big Brothers Big Sisters, and his local church. The PMD Foundation is one organization that Jeremy, along with many other PMD families, has identified as a great resource of information and support following the diagnosis of his son Camden.
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She is married to Sander and they have two children: Selina and Valentin. Valentin was born in June 2013 and diagnosed in December 2015 with PMD. Ever since Marianne is constantly in touch with colleagues from various departments and researchers around the world to find a cure or a treatment and build a strong case to be heard at bio-pharmaceutical companies. Furthermore, she wants to ensure that Europe (ELA – European Leukodystrophies Association) and USA (PMD Foundation) work closely together to achieve our common global goal to cure PMD.
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A driven business leader and steward for causes dear to her heart, Maureen contributes greatly to non-profit organizations nationwide – primarily contributing to organizations focused on entrepreneurship, women’s issues and youth.
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