From Poland, Alicja Hałąs shares the story of her son, Olaf: Olaf was born on July 25, 2013, the youngest of four children. From the very beginning, we noticed that something was wrong - his eyes were moving from side to side - nystagmus - and he wasn’t reaching milestones like his peers.
Read MoreSignificantly surpassing a stretch goal of $25,000 to fund research for PMD treatment and therapies. Welcoming 360 participants from the U.S., Switzerland, and Austria who raised a grand total of $31,712.
Read MoreBrayden, who was diagnosed with PMD when he was one, received a special birthday present when his family and friends honored him with a Virtual Walk, Run and Roll to benefit the PMD Foundation and PMD Family Support.
Read MoreThank you for your continued generosity towards the PMD Foundation so far in 2021! The Foundation took in donations of over $35,000 for the first eight months of 2021 given the success of the Virtual 5K and Brayden’s Walk, Run, and Roll!
Read MoreAlex and Igor were born in Brazil on November 26, 1984, and on May 23, 1989. At 14 years old, Igor presented his first symptoms and Alex at 18 years old.
Read More
