Driving progress
so no one faces
PMD alone
The PMD Foundation brings together families, clinicians, and researchers to improve lives today while working toward better treatments for tomorrow.
Why we exist
No family expects a diagnosis like PMD. We exist to ensure that when it happens, no one has to navigate it without support.
The PMD Foundation helps families:
Find Answers
We provide clear, trusted information so families can understand PMD and make informed decisions from the moment of diagnosis.
Find Your People
We bring together families, caregivers, and advocates so that no one faces PMD in isolation.
Find Progress
We connect families to specialist care networks, researchers, and clinical studies working towards better treatments.
Our values
Put Families First
We meet every family with empathy, respect, and understanding, recognizing the emotional and practical challenges of living with PMD. Everything we do is guided by the needs, dignity, and wellbeing of the people and families we serve.
Our values
Stand Together
No one should face PMD alone. We foster a global community where families can connect, share experiences, and support one another through every stage of the PMD journey.
Our values
Carry Hope Forward
Together with researchers and clinicians, we support the work that moves understanding of PMD forward and brings new treatments within reach. By connecting families with clinical studies, we help turn hope for the future into meaningful progress.
The community we serve
PMD affects not just one person, but entire families and communities. We support everyone affected by the condition, in different ways.
Children and families living with PMD
A diagnosis of PMD can feel scary. We provide step-by-step information, practical guidance, and a supportive community to help families find their footing through turbulent periods.
From early questions to ongoing care, we are here to help families feel informed, connected, and supported at every stage of their PMD journey.
The general public
Awareness of PMD is still limited, which can leave families feeling isolated. We work to increase understanding of the condition and build a broader community of support.
By sharing stories and raising awareness to more people, we help ensure that families affected by PMD are seen, understood, and supported.
Researchers and clinicians
The future of PMD depends on collaboration. We support clinicians and researchers by sharing knowledge, connecting families to clinical trials, and fundraising for projects that may one day bring us closer to a cure.
By bridging the gap between families and the scientific community, we help move research forward and make new treatments possible.
Meet our team
Behind the PMD Foundation is a group of people deeply committed to the families we serve. Our Board combines lived experience of PMD and professional expertise to guide our work and shape our future.
Take the next step
Get in touch with the PMD Foundation for support, guidance, or information.
If you are part of a family that’s been affected by PMD, join our PMD Family Network to become part of a connected and informed community.
