Join the PMD Family Network

The PMD Family Network is open to any parent/legal guardian or sibling that is interested in accessing our advocacy services and programs.

Join the PMD Family Network

Sign up below to be a part of this patient family community and to stay up to date on new developments in PMD research, clinical trials, and educational and fundraising events.

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Name*

Relationship to patient*

Email address*

Patient First name*

Patient Last name*

Gender of patient*

Birthday of patient

Diagnosis*

Year of diagnosis*

Mutation type (if known)

Address Line 1

Address Line 2

City

State

Zip

Country

How did you find us?

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Connect with another PMD caregiver

Please tick this box if you would like to be connected directly to another PMD caregiver?

We can connect you by email to another caregiver who is available to answer specific questions you may have or just lend a listening ear. We will attempt to find a family who either lives in your region, has a child of similar age, or other connection.

PMD Foundation newsletter

Please tick this box if you would like to receive the PMD Foundation’s monthly email newsletter and information about our upcoming programs/events?

The information collected by the PMD Foundation will not be sold or distributed outside of PMD Foundation and is used solely to verify the identity of and communicate with Family Network members as needed. The PMD Family Network is open to any parent, caregiver, sibling or extended family member who is interested in learning more about Pelizaeus-Merzbacher disease and supporting our community of families affected by PMD. By submitting this form, you agree to our Terms of Use, Privacy Policy, and verify that the information provided is accurate to the best of your knowledge. You also understand that providing false or inaccurate information may result in your dismissal from the PMD Family Network.

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Participating in research at CHOP

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Meet our team

Join the PMD Family Network

Join the PMD Family Network