Support the PMD Foundation

Donate now

As a 501(c)3 organization, the PMD Foundation relies on voluntary contributions from the community to serve those affected by PMD. Our organization provides education, research, service, and advocacy to families affected by Pelizaeus-Merzbacher Disease.

Other ways to help

a child in a wheelchair with lots of happy birthday balloons tied to it

There are many ways to support the PMD and PMLD community beyond donating, from fundraising and awareness efforts to volunteering and advocacy.

Why your support matters

Your support matters to us

PMD and PMLD are rare conditions, and many families spend years searching for answers, support, and connection.

Your support helps families access trusted information, connect with others who understand what they are going through, and stay informed about research and clinical progress. It also helps strengthen advocacy efforts and support programs that improve the everyday lives of those affected by PMD.

For many families, knowing they are not facing PMD alone can make a meaningful difference.

How your support helps

Know where your giving goes

58^%

58% of our funds are spent on research grants, which help fund research of therapeutic treatments to treat genetic mutations of PMD

30^%

30% of our costs are spent on fundraising,  making sure we can  keep our work going  in the future

12^%

12% of our funds goes towards administrative costs, to keep our team efficient and accountable

Giving options

Ways to give

No matter how big or small, your donation helps families access support, connection, and hope while advancing research and care for PMD and PMLD. Help make a difference today.

One-time donation

Make a single contribution to help support families affected by PMD and PMLD and advance the Foundation’s mission.

Donate

Monthly giving

Monthly donations provide ongoing support that helps sustain resources, community programs, and advocacy efforts throughout the year.

Donate

Philanthropic partnerships

We welcome partnerships with corporations, foundations, and philanthropic organizations that share our commitment to supporting rare disease communities and advancing PMD research and care.

Contact us about philanthropy

Other ways to help

Get involved

Fundraise for the PMD Foundation

Community fundraising efforts help raise both awareness and critical support for families affected by PMD. Whether it’s a charity walk, school fundraiser, birthday campaign, or online fundraiser, every effort helps move the mission forward.

Raise awareness

a child standing next to their school work

Greater awareness can help families feel seen, understood, and connected to support earlier. You can help by sharing educational resources, participating in Rare Disease Day, supporting advocacy efforts, or helping others learn more about PMD  and PMLD.

Join the PMD Family Network

two teens with a dog, one in a wheelchair

Connecting families helps build a stronger and more supportive PMD community for everyone affected.

Join our Run, Walk or Roll 5K

Every September for Leukodystrophy Awareness Month, PMD Foundation raises awareness for leukodystrophies by hosting a Run, Walk or Roll for PMD & PMLD.

Donate your birthday

Celebrate your birthday by supporting families affected by PMD. Create a Facebook fundraiser and choose the PMD Foundation as your charity. It only takes a few minutes to set up, and your celebration can help provide resources, connection, and support for families living with PMD.

Donate a vehicle

Support the PMD Foundation by donating a vehicle through the Cars for Charity program. Contact them directly at 888-755-5435.

Impact story

Knowledge is certainly power, and it is great that this rare disease has received much attention as we progress towards a viable therapeutic. In this case, caregivers, such as myself, are the much-needed voice for PMD

Jeremy, Parent to Camden

Families affected by PMD often describe community support as life-changing. Through shared experiences, practical guidance, and connection, families help one another navigate life with PMD together.

Explore all stories

Our commitment to transparency & accountability

The PMD Foundation’s Board of Trustees is committed to finding the best use of our funds to further the mission of the Foundation. We are proudly certified with a Candid Platinum Seal of Transparency for disclosure of our financial information.

Learn more