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Family Stories

Read stories shared by families living with PMD and PMLD — honest experiences of love, resilience, challenge, and connection from across the PMD Family Network. 

“No two journeys are the same, but many families share similar experiences.”

"I am constantly searching for stories of families facing similar challenges that will guide me with hope and strength."

Share your family’s story

Family stories help heal, inform, and inspire people in our PMD and PMLD community. Sharing your experiences also raises awareness of very important issues and potential areas to study.

That’s why we want to hear from you! We’re collecting stories of families and people living with PMD and PMLD.

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