Support at every
step of living with
PMD & PMLD
Whether newly diagnosed or further along your PMD or PMLD journey, we’re here to help you find guidance, connection, and support.
Newly diagnosed with PMD
After finding the PMD Foundation online, and reading stories of other families, we were comforted to know we were not alone.
Megan DeMartini, Ashley’s mother
Connecting you to support
Support can come in many forms: information, shared experiences, or simply knowing someone else understands. We help connect families to a wider network of support, both within the PMD Foundation and beyond.
You can join our PMD Family Network to stay informed about research, clinical trial opportunities, and community updates. We also encourage families to connect with peer support groups and partner organizations that specialize in rare neurological conditions.
Wherever you are, building connections can make a meaningful difference.
Frequently asked questions
It’s okay to take things one step at a time. Many families begin by learning more about PMD and connecting with others who understand what they’re going through.
Our Newly Diagnosed page is a good place to begin, with clear guidance and support.
Many people find comfort in speaking with other families who have faced similar challenges in their PMD journey.
You can join our PMD Family Network or explore peer support groups where families ask questions, share their experiences, and uplift each other.
Yes. If you’re in the process of seeking answers or have concerns about your child’s development, you’re still welcome to access information and support.
You don’t need to have everything figured out before reaching out.
Help families affected by PMD & PMLD
Your support funds research, resources, and community programs that make a real difference in the lives of families navigating PMD and PMLD.