About PMD & PMLD
- - - What is PMD?
    - What is PMLD?
  - - Make a Donation
      
      As a 501(c)3 organization, the PMD Foundation relies on voluntary contributions from the community to serve those affected by PMD. Our organization provides education, research, service, and advocacy to families affected by Pelizaeus-Merzbacher Disease.
      
      Make a Donation
Support
- - - Join the PMD Family Network
      
      The PMD Family Network is open to any parent/legal guardian or sibling that is interested in accessing our advocacy services and programs.
      
      Join the PMD Family Network
Stories
Research & Progress
- - - News & updates
  - - Participating in research at CHOP
      
      The Leukodystrophy Center at Children’s Hospital of Philadelphia (CHOP) offers various clinical and research options that may be of interest to your family.
      
      Online Referral Form
Support the Foundation
- - - Donate
  - - Make a Donation
      
      As a 501(c)3 organization, the PMD Foundation relies on voluntary contributions from the community to serve those affected by PMD. Our organization provides education, research, service, and advocacy to families affected by Pelizaeus-Merzbacher Disease.
      
      Make a Donation
For Healthcare Professionals
About us
- - - Meet our team
      
      Behind the PMD Foundation is a group of people deeply committed to the families we serve. Our Board combines lived experience of PMD and professional expertise to guide our work and shape our future.
      
      Meet the team

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Event

Follow the progress being made across the PMD and PMLD community, including research developments, awareness initiatives, partnerships, events, and stories from families and advocates around the world.

Birthday Boy Brayden Celebrated with PMD Walk, Run and Roll...

October 13, 2021

Brayden, who was diagnosed with PMD when he was one, received a special birthday present when his family and friends honored him with a Virtual...

A Global Success Story for the PMD Foundation

December 2, 2021

Each September we honor Leukodystrophy month with our annual Run, Walk or Roll event. We invite teams to make miles towards our goal of $25,000...

2022 Run, Walk, or Roll Fundraiser Dramatically Surpasses Goal

October 18, 2022

What do you do when you beat a previous year’s fundraising goal? Double it! This year’s Run, Walk or Roll doubled its 2022 goal from...

Make a Donation

Join the PMD Family Network

Participating in research at CHOP

Make a Donation

Meet our team

Event