About PMD & PMLD
- - - What is PMD?
    - What is PMLD?
  - - Make a Donation
      
      As a 501(c)3 organization, the PMD Foundation relies on voluntary contributions from the community to serve those affected by PMD. Our organization provides education, research, service, and advocacy to families affected by Pelizaeus-Merzbacher Disease.
      
      Make a Donation
Support
- - - Join the PMD Family Network
      
      The PMD Family Network is open to any parent/legal guardian or sibling that is interested in accessing our advocacy services and programs.
      
      Join the PMD Family Network
Stories
Research & Progress
- - - News & updates
  - - Participating in research at CHOP
      
      The Leukodystrophy Center at Children’s Hospital of Philadelphia (CHOP) offers various clinical and research options that may be of interest to your family.
      
      Online Referral Form
Support the Foundation
- - - Donate
  - - Make a Donation
      
      As a 501(c)3 organization, the PMD Foundation relies on voluntary contributions from the community to serve those affected by PMD. Our organization provides education, research, service, and advocacy to families affected by Pelizaeus-Merzbacher Disease.
      
      Make a Donation
For Healthcare Professionals
About us
- - - Meet our team
      
      Behind the PMD Foundation is a group of people deeply committed to the families we serve. Our Board combines lived experience of PMD and professional expertise to guide our work and shape our future.
      
      Meet the team

Donate

PMLD

Follow the progress being made across the PMD and PMLD community, including research developments, awareness initiatives, partnerships, events, and stories from families and advocates around the world.

Two Communities Combine: Welcome the Pelizaeus-Merzbacher-Like Disease (PMLD) Group to...

March 17, 2021

Maite Robinson talks about the formation of the PMLD Group and how it’s merging with the PMD Foundation Recently, it was announced that the PMLD...

Keeping Our PMD and PMLD Warriors Safe

January 18, 2024

The door was closed and latched. Tom* had to back up to pull it open. There was a huge noise and he started screaming. His...

Hearts and Soles for PMD: 2023 Run, Walk or Roll...

October 11, 2023

Event organizers had full confidence in the PMD Warrior teams when they increased this year’s Run, Walk or Roll fundraising goal from $50,000 to $75,000,...

Make a Donation

Join the PMD Family Network

Participating in research at CHOP

Make a Donation

Meet our team

PMLD