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Press Releases

Follow the progress being made across the PMD and PMLD community, including research developments, awareness initiatives, partnerships, events, and stories from families and advocates around the world. 

PMD Natural History Study

PMD Natural History Study Call for Families - Chloe Stutterd, Victorian Clinical Genetics Services

October 28, 2019

Dear Parents, Patients, and Relatives: PMD Natural History Study Call for Families – Chloe Stutterd, Victorian Clinical Genetics Services The PMD Foundation, in partnership with...

PMD Foundation Awards $200,000 in Grant Funding for Pelizaeus-Merzbacher Disease...

June 2, 2022

NEW JERSEY - With compelling competition for its research grant, the PMD Foundation is pleased to announce the unprecedented funding of two research projects totaling...

PMD Foundation Announces New Leadership

January 18, 2024

January 2024 – The Board of Directors of the PMD Foundation is pleased to announce the transition for the role of Board Chair. Storm Greenway...

PMD Foundation Announces International Natural History Study on Individuals with...

August 22, 2019

SALADO, TX | August 21, 2019 -- The PMD Foundation, in partnership with Children’s Hospital of Philadelphia (CHOP) and an international consortium of leukodystrophy clinicians...

GLIA-CTN Program Officially Awarded – What it Means for the...

October 28, 2019

This month the National Institute of Health (NIH) awarded The Global Leukodystrophy Initiative – Clinical Trial Network (GLIA-CTN) a 5 year $5 Million dollar grant....

BREAKING: Potential Therapeutic Approach to Treatment for Pelizaeus-Merzbacher Disease Announced

January 25, 2022

In breaking news regarding the treatment of Pelizaeus-Merzbacher disease (PMD), Case Western Reserve University and Ionis Pharmaceuticals, Inc. have signed an exclusive license agreement to...