About PMD & PMLD
- - - What is PMD?
    - What is PMLD?
  - - Make a Donation
      
      As a 501(c)3 organization, the PMD Foundation relies on voluntary contributions from the community to serve those affected by PMD. Our organization provides education, research, service, and advocacy to families affected by Pelizaeus-Merzbacher Disease.
      
      Make a Donation
Support
- - - Join the PMD Family Network
      
      The PMD Family Network is open to any parent/legal guardian or sibling that is interested in accessing our advocacy services and programs.
      
      Join the PMD Family Network
Stories
Research & Progress
- - - News & updates
  - - Participating in research at CHOP
      
      The Leukodystrophy Center at Children’s Hospital of Philadelphia (CHOP) offers various clinical and research options that may be of interest to your family.
      
      Online Referral Form
Support the Foundation
- - - Donate
  - - Make a Donation
      
      As a 501(c)3 organization, the PMD Foundation relies on voluntary contributions from the community to serve those affected by PMD. Our organization provides education, research, service, and advocacy to families affected by Pelizaeus-Merzbacher Disease.
      
      Make a Donation
For Healthcare Professionals
About us
- - - Meet our team
      
      Behind the PMD Foundation is a group of people deeply committed to the families we serve. Our Board combines lived experience of PMD and professional expertise to guide our work and shape our future.
      
      Meet the team

Donate

Manley family

Follow the progress being made across the PMD and PMLD community, including research developments, awareness initiatives, partnerships, events, and stories from families and advocates around the world.

The Biggest Moment in The PMD Foundation’s History

March 22, 2019

The PMD Foundation is working hard to finalize and fund a Retrospective Natural History Study for PMD. This will be the biggest moment in The...

Don’t Take Your Lamborghini to Just Anyone!

July 6, 2018

When trying to explain our experience to friends and family upon our return I used the following analogy: If you owned a Lamborghini and it...

Make a Donation

Join the PMD Family Network

Participating in research at CHOP

Make a Donation

Meet our team

Manley family