As a 501(c)3 organization, the PMD Foundation relies on voluntary contributions from the community to serve those affected by PMD. Our organization provides education, research, service, and advocacy to families affected by Pelizaeus-Merzbacher Disease.
The PMD Family Network is open to any parent/legal guardian or sibling that is interested in accessing our advocacy services and programs.
The Leukodystrophy Center at Children’s Hospital of Philadelphia (CHOP) offers various clinical and research options that may be of interest to your family.
Behind the PMD Foundation is a group of people deeply committed to the families we serve. Our Board combines lived experience of PMD and professional expertise to guide our work and shape our future.
You Can Make An Impact on PMD Fundraising
November 16, 2019
The PMD Foundation is honored to be the beneficiary of a handful of grassroots fundraisers – including golf tournaments in Texas, Michigan, and New Jersey,...
2nd Annual Harter Cup
July 3, 2018
The Harter Cup is played in support of the PMD Foundation and named in the memory of Jack, Dick (Jack’s grandfather), and John (Jack’s great...
A Medical History Lesson : Pelizaeus-Merzbacher a Fundamental Disease
September 28, 2015
PMD is not a progressive, demyelinating disease. Human PMD studies can provide researchers with a longer timeframe to study specific patients. PMD research can potentially...
Announcing our first ever 2020 Virtual PMD Symposium!
July 1, 2020
We are excited to announce that we will have our first ever Virtual PMD Symposium in collaboration with the Children’s Hospital of Philadelphia (CHOP) and...
Two Communities Combine: Welcome the Pelizaeus-Merzbacher-Like Disease (PMLD) Group to...
March 17, 2021
Maite Robinson talks about the formation of the PMLD Group and how it’s merging with the PMD Foundation Recently, it was announced that the PMLD...
The Insurance Place + Erie Insurance Raise Over $2,000 for...
On November 18, 2019, The Insurance Place Agency celebrated their accomplishment of raising $2,055 for The PMD Foundation in honor of Leukodystrophy Awareness Month in...
Team Logan Golf Outing
July 11, 2019
On June 15, 2019, Logan Parker, Texas, and family hosted a golf outing at the beautiful golf course, Mill Creek Country Club. The weather was...
Share your story with the PMD Family Stories Project!
July 9, 2021
Connections form community. Family stories help heal, inform, and inspire people in our PMD community. Sharing your experiences also raises awareness of very important issues...
Save the Date for the PMD Scientific Symposium + Health...
Please mark your calendars for July 22-25, 2020 to attend the Scientific Symposium and Health Fair at Children’s Hospital of Philadelphia (CHOP). CHOP is the...
