As a 501(c)3 organization, the PMD Foundation relies on voluntary contributions from the community to serve those affected by PMD. Our organization provides education, research, service, and advocacy to families affected by Pelizaeus-Merzbacher Disease.
The PMD Family Network is open to any parent/legal guardian or sibling that is interested in accessing our advocacy services and programs.
The Leukodystrophy Center at Children’s Hospital of Philadelphia (CHOP) offers various clinical and research options that may be of interest to your family.
Behind the PMD Foundation is a group of people deeply committed to the families we serve. Our Board combines lived experience of PMD and professional expertise to guide our work and shape our future.
Update on the PMD Natural History Study
November 16, 2019
In August of 2019, The PMD Foundation, Children’s Hospital of Philadelphia (CHOP) and an international consortium of leukodystrophy researchers launched an initiative to collect robust...
PMD Foundation Treasurer’s Report Highlights 2021 YTD Fundraising
October 11, 2021
Thank you for your continued generosity towards the PMD Foundation so far in 2021! The Foundation took in donations of over $35,000 for the first...
PMD Foundation Supporting Families Around the World
June 23, 2022
Pelizaeus-Merzbacher Disease and Pelizaeus-Merzbacher-Like Disease are not impeded by geographic boundaries. Families from all over the world face PMD and PMLD challenges and many parents...
PMD Foundation Remains on Solid Ground Midway Through 2023
June 20, 2023
Thanks to our community's continued generosity and support, the PMD Foundation remains on solid ground midway through 2023.
PMD Foundation Remains on Solid Ground through 2024
November 18, 2024
Every September we celebrate Leukodystrophy month with our Run, Walk, or Roll event. Our Warrior Teams raise funds for research and awareness for all of...
PMD Foundation Q4 Treasurer’s Report
January 14, 2022
First of all, thank you for your continued generosity towards the PMD Foundation in 2021! The Foundation took in donations of over $64,000 for the...
PMD Foundation on Solid Ground Financially Moving Into 2023
February 1, 2023
Thanks to our community's continued generosity and support, the PMD Foundation has entered the new year on solid ground.
PMD Foundation in Strong Financial Health
July 12, 2024
A big thank you to the PMD community as we are off to another strong start to the year from a fundraising perspective! We raised...
PMD Foundation Finishes Q2 Strong Financially
July 26, 2022
The PMD Foundation ended June 2022 with total cash of $195,823, down just over $48,000 from the end of last year given the first payment...
