As a 501(c)3 organization, the PMD Foundation relies on voluntary contributions from the community to serve those affected by PMD. Our organization provides education, research, service, and advocacy to families affected by Pelizaeus-Merzbacher Disease.
The PMD Family Network is open to any parent/legal guardian or sibling that is interested in accessing our advocacy services and programs.
The Leukodystrophy Center at Children’s Hospital of Philadelphia (CHOP) offers various clinical and research options that may be of interest to your family.
Behind the PMD Foundation is a group of people deeply committed to the families we serve. Our Board combines lived experience of PMD and professional expertise to guide our work and shape our future.
Don’t Take Your Lamborghini to Just Anyone!
July 6, 2018
When trying to explain our experience to friends and family upon our return I used the following analogy: If you owned a Lamborghini and it...
2025 Grant Announcement
February 13, 2025
The PMD Foundation is excited to share a new grant that will support brain organoid research at Case Western Reserve University School of Medicine, led...
2024 Treasurer’s Report
A big thank you to the PMD community as 2024 marked another strong year from a fundraising perspective! We raised almost $80,000 for the year...
2022 Run, Walk, or Roll Fundraiser Dramatically Surpasses Goal
October 18, 2022
What do you do when you beat a previous year’s fundraising goal? Double it! This year’s Run, Walk or Roll doubled its 2022 goal from...
Leukodystrophy Conference Impressions
July 9, 2018
On June 16th I attended the conference Leukodystrophy: Current, Novel, and Future Therapies, hosted by McGill University Children’s Hospital and Dr. Geneviève Bernard in Montréal,...
