As a 501(c)3 organization, the PMD Foundation relies on voluntary contributions from the community to serve those affected by PMD. Our organization provides education, research, service, and advocacy to families affected by Pelizaeus-Merzbacher Disease.
The PMD Family Network is open to any parent/legal guardian or sibling that is interested in accessing our advocacy services and programs.
The Leukodystrophy Center at Children’s Hospital of Philadelphia (CHOP) offers various clinical and research options that may be of interest to your family.
Behind the PMD Foundation is a group of people deeply committed to the families we serve. Our Board combines lived experience of PMD and professional expertise to guide our work and shape our future.
Birthday Boy Brayden Celebrated with PMD Walk, Run and Roll...
October 13, 2021
Brayden, who was diagnosed with PMD when he was one, received a special birthday present when his family and friends honored him with a Virtual...
The Biggest Moment in The PMD Foundation’s History
March 22, 2019
The PMD Foundation is working hard to finalize and fund a Retrospective Natural History Study for PMD. This will be the biggest moment in The...
A Year in Review: 2023 PMDF Treasurer’s Report
January 17, 2024
A big thank you to the PMD community as we finished another successful year!We raised just under $75,000 in 2023, crossing the finish line with...
A Global Success Story for the PMD Foundation
December 2, 2021
Each September we honor Leukodystrophy month with our annual Run, Walk or Roll event. We invite teams to make miles towards our goal of $25,000...
Dicerna Announces New Technology
April 8, 2021
We are very excited to learn of Dicerna’s new technology to deliver medicines to cell types in the brain including oligodendrocytes. Since PMD affects oligodendrocytes...
PMD Foundation Treasurer’s Report Highlights Q1 Fundraising
June 21, 2021
First of all, thank you for your continued generosity towards the PMD Foundation in the first quarter of 2021! The Foundation took in donations of...
Thank you! PMD Families Meet Goal for IONIS Pharmaceuticals Survey
March 19, 2021
YouTubeThis content is blocked because YouTube cookies have not been accepted.Accept cookies We’re here with a great, big, warm THANK YOU to the PMD community....
My Son Can’t Move His Body
September 28, 2015
I held you in my arms a few minutes ago. I was contemplating the future and it is overwhelming. So I choose to exist here...
Volunteers Needed!
July 3, 2018
The PMD Foundation is looking for volunteers to assist with grant research. No experience necessary! Grants are a great way to connect the exciting work...
