As a 501(c)3 organization, the PMD Foundation relies on voluntary contributions from the community to serve those affected by PMD. Our organization provides education, research, service, and advocacy to families affected by Pelizaeus-Merzbacher Disease.
The PMD Family Network is open to any parent/legal guardian or sibling that is interested in accessing our advocacy services and programs.
The Leukodystrophy Center at Children’s Hospital of Philadelphia (CHOP) offers various clinical and research options that may be of interest to your family.
Behind the PMD Foundation is a group of people deeply committed to the families we serve. Our Board combines lived experience of PMD and professional expertise to guide our work and shape our future.
Rolling Through Life
January 17, 2016
An inspirational speech by a young man, Cisco Oller, who battles Pelizaeus-Merzbacher Disease and is bringing down barriers with love, perseverance, and faith.
Great Numbers & Heartfelt Stories Make Virtual Run, Walk or...
October 13, 2021
Significantly surpassing a stretch goal of $25,000 to fund research for PMD treatment and therapies. Welcoming 360 participants from the U.S., Switzerland, and Austria who...
GLIA-CTN Program Officially Awarded – What it Means for the...
October 28, 2019
This month the National Institute of Health (NIH) awarded The Global Leukodystrophy Initiative – Clinical Trial Network (GLIA-CTN) a 5 year $5 Million dollar grant....
Giving Tuesday 2020 is Here
November 19, 2020
2020 has been a challenging year, but the PMD Foundation still has a lot to be thankful for. We funded research for doctors around the...
Double Your Dollar
November 16, 2019
Your gifts always go a long way at the PMD Foundation. And now, they can go even further. Between now and December 31st, thanks to...
Walk, Run or Roll a Mile (or a Few!) to...
June 18, 2021
September is Leukodystrophy month, and this year, PMD Foundation is raising awareness about leukodystrophies by hosting a Virtual Run, Walk or Roll! Whether it’s a...
Dr. Robert Skoff Researches Approved FDA Drugs for Use with...
March 13, 2019
Dr. Robert Skoff of Wayne State University has been a long-time researcher of Pelizaeus Merzbacher Disease (PMD) in mice. Fortunately for Dr. Skoff’s research, rodents...
Share Your Insight to Help Develop New Potential PMD Therapies
January 6, 2021
Take a survey to help industry leaders understand what it’s like living with PMD and to help guide the development of new potential PMD therapies...
BREAKING: Potential Therapeutic Approach to Treatment for Pelizaeus-Merzbacher Disease Announced
January 25, 2022
In breaking news regarding the treatment of Pelizaeus-Merzbacher disease (PMD), Case Western Reserve University and Ionis Pharmaceuticals, Inc. have signed an exclusive license agreement to...
